dog
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Posts: 23
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Post by dog on Dec 1, 2010 18:35:40 GMT -5
FYI.
I've recently tried to post some comments about Dr. Elists procedures and my MNS account will not let me post any negative information. It just gets immediately deleted. I find this strange as I've only been a causal poster (and interestingly enough an EX ELIST patient for the penile implant).
As some of you know I had the penile implant and testicle implants. I've had the penile implant removed and I've lost about 3" in erect length and now have erection problems. Of course, that is pretty standard for anyone having the implant removed.
For people considering this implant, PLEASE think 5x before doing it. Statistically, the positive outcome for this procedure is exceedingly low and unfortunately, the DR misleads you on statistics.
It is a shame that MNS is contributing to ruining people's lives by editing vital information. I really wish I knew the people in charge of MNS and somehow hold them liable along with rogue DR's who do not have a patients' best interest at heart.
If this comes out as a rant, please understand I do not want anyone to have to go through the pain that I and others have, after having this procedure and subsequent removal.
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Post by Skeptical One on Dec 1, 2010 22:23:56 GMT -5
They have virtually silenced me too. I submit posts and it reads something like "Requires moderator approval..." and it never actually gets posted - apparently MNS is not keen on me spreading the word that there is a more open & honest forum.
MNS is a joke and quite frankly I'm disappointed that some of the veterans over there haven't migrated over here yet, but thats their decision to make. By continuing to post there, it only legitimizes that site to newcomers. I think anyone here who still posts at MNS should include a link to this site any way that can and hope it somehow gets past the moderator. Maybe just referencing the site could help.
As for your situation dog, rest assured you can discuss your story here as long as they are within forum rules (found at the Feedback Forum). 3" loss in erect length? That sounds a bit extreme, sorry to hear that. Can you elaborate on why you had it removed in the first place?
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dog
New Member
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Post by dog on Dec 2, 2010 1:11:41 GMT -5
I'm not sure you if are doing this, but are you adding this content to google? I tried searching for this board and it was not coming up.
Thanks.
Dog
PS I'll go over my experience in a while when I collect my thoughts and what I am going to do.
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Post by Skeptical One on Dec 2, 2010 1:42:14 GMT -5
I have been working on promoting the visibility of this site, but not as intensely as I plan to do for the remaining part of December. I've been somewhat busy the past few weeks but I hope to have some major progress for the new Year.
As for google, Proboards is not quite compatible with Google's Webmaster Central tool (in the sense that I cannot manipulate or add things to the HTML of this site), but I have been learning about alternative routes to improve visibility to this site.
I've also began to link this site at other (more "crawlable") penis sites which in turn improve our visibility. Keep in mind this site is not even 3 months old (I don't think) and I suspect it will improve in its search engine visibility over time.
If you have any suggestions or advice on other things I can do to improve the site's visibility, please PM them or email (phalloboards@yahoo.com) to me, thanks!
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Post by Skeptical One on Dec 2, 2010 1:44:01 GMT -5
Oh and I should add that being a proboards forum gives us some added visibility on their end, and they will be introducing in a new version for this forum which will make it Google Webmaster Central compatible.
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Post by Skeptical One on Dec 2, 2010 1:55:28 GMT -5
And as for returning to the original topic, I want to point out something you mentioned: Statistically, the positive outcome for this procedure is exceedingly low and unfortunately, the DR misleads you on statistics.While it is imperative you speak your mind and share your experiences, I must bring to your attention our forum rules found at phalloplasty.proboards.com/index.cgi?board=general&action=display&thread=6Your statement suggests a certain statistic that hasn't been cited and certainly cannot be verified by simply stating it. Rule R7. states: Falsifying information about a surgical method's technique, effectiveness, side effects, and success rate(s) is wrong and unacceptable.I'm not accusing you of falsifying anything intentionally, but because of the fiasco over there at MNS I've been forced to bring to everyone's attention the importance of sharing accurate information in a world tainted with bias and distortion. While I wont delete that sentence or your post, I'm asking that you refrain from asserting the existence of statistics unless you can legitimately cite them. It is just as unfair for the doctor to tell us there is a "good chance" we'll succeed without any proof as it is for someone to anonymously suggest the chances are very low. I should also mention that at MNS some argued that the number of people reporting negative outcomes serves as a source behind these "low statistics," but in reality they are far from being legitimate sample sizes. This isn't a chastisement and I'm sure you were simply writing your post as it came naturally to you. I'm also not normally this nit-picky, but I wanted to remind everyone of the importance of how we go about discussing these (serious) matters. We all know how things got nasty over at MNS, and that is why I wrote out the forum rules as lawyerly-like as possible with every intention of enforcing them. Sorry for the long rant, and thanks for your understanding. --------------------------------------------------- If you don't mind sharing dog, what was your original erect length prior to losing the 3" ??
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dog
New Member
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Post by dog on Dec 2, 2010 15:09:58 GMT -5
Hi SO:
Fair enough. At the same time though, any DR. should provide legitimate statistics with research that proves their claim and be held to the same standards as the one you quoted me.
Before I drop this subject (and you are welcome to delete it), all I ask is that you think about it first.
I was one of the first five people over at MNS to get the penile implant. I've kept in personal contact with each of those people. Out of 10 people on that site last year (not including recent patients like mustang), only 3 kept the implant in within a year. All others had infection, perforation, or stitches popped warranting removal/fix. Of the three that kept it in, two had to have another surgery to fix the implant within 5 months. My pool of people may not reflect the total number of patients with Dr. Elist. However, I've randomly come upon these people with no agenda (as I was one with the implant myself) and my only hope was for success. 7 out of 10 removal? Those odds are very bad and should be known.
I was told by Dr. Elist that removal rate due to infection/implant perforation was less that 1%. That 1% can't be true as he hasn't done more than 2000 implants. Now here is the kicker, you will be told that he's done many implants, BUT , he does other types of implants such as penile implants for impotence, and the statistics given on his site are for those types of surgeries, NOT for the enlargement surgery. I researched them via AMA and other sites. So the statistics for the impotence implants are being used for the enlargement prosthesis, which is just not true.
It just doesn't add up and people should know this.
Dog.
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Post by Skeptical One on Dec 2, 2010 20:44:37 GMT -5
It is appropriate to say "70% of people I know have had the implant removed," rather than implying "70% of Elist's patients have had the implant removed." I think that's fair in that it demonstrates the seriousness of the risk while complying with forum rules.
Your post discussing specific numbers is all I ask for, as long as you are citing your figures and not asserting percentages as facts without hard evidence.
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Post by Skeptical One on Dec 2, 2010 20:51:48 GMT -5
and dog, rest assured I want everyone to be aware of the risks involved with the implant. I wouldn't be surprised if the rejection/removal rate was at 50% + but as Forum Admin I have a responsibility to fair discourse, that is all. I hope you understand where I am coming from. But I wont be deleting anything, I just hope everyone knows where I'm coming from - that we can discuss how many people we know who have had it removed and that is fine. But we have to be careful NOT to assert success rate(s) in a way that sounds like we have first-hand knowledge of the doctor's numbers. If you wish to continue this specific conversation with me you are more than welcome to PM/email me. Trust me, if I got my hands on any definitive figures on Elist removal rates, I'd be the first to publish them here. But for the sake of discussion, and for your story, I say we resume the original topic at hand ---------------------------------------------- Are you stretching right now to attempt regaining any of the loss length? Manual PE exercises have shown promise in regaining at least an inch or two (check out thundersplace dot com)
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Post by Skeptical One on Dec 2, 2010 20:57:31 GMT -5
Actually if you want to re-create a thread regarding your matter/story you can do that too.
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Post by sheldon on Dec 8, 2010 11:58:19 GMT -5
Is the editing done by Chad Hedman?
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